At just 5 months old, Emmett was diagnosed with Spinal Muscular Atrophy, Type 1. It is the most severe SMA type with life expectancy of approximately two years . We welcome you to join him on his journey ...

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I know. You're looking at the title, Blessings, and saying that there is no way. I guess logically there is no way there should be blessing through this, but if we look at it illogically there are. Lots of them. So break out of your rut, and look at this illogically. We are. We have too!

Dr. Selby is the leading SMA neurologist on the west coast, if not in Canada. What a blessing to have someone who knows almost everything there is to know about this genetic disease. The medical team - more on them in a later blog - is extensive and wonderfully caring.

There have been gifts of gas cards/money to help cover the multiple trips to BC Children's Hosptial. That is absolutely a wonderful to a young family on a tight budget. There have been friends who've supported those of us in the East to make it out west with access to great discounts on flights. A trip to the CNE and in October a visit to the BC Lions - with fieldside access! Memories that will last a lifetime. I contacted Jolly Jumper for support because, while Emmett really enjoys his Jolly Jumper, it take two people to keep him going. One to support him and one to bounce him. They didn't have anything to support him, but suggested a couple of their products that might help me in my designs. They did. Stay tuned. Hopefully we have video to show you soon.


This blog has the full support of OSM Networks. I have another website with them and, while I was working on a draft of the blog, I had a few questions that I didn't have answers for. Not only did OSM Networks have the answers, they assigned their staff to set it up properly and are hosting it. All at their expense. We really appreciate that. That literally brought a flood of tears.

Support from friends and emails from around the country have been coming to them. Offering support and asking how help could be provided. We hope that through this blog you will be able to stay in touch with Emmett, Alisha, and Joshua. Hopefully over time it will provide you with a means of supporting them. Practical things have been so touching. The loan of a travel trailer to handle guests who've come from out of town. Likewise, a bed was provided to give extra space. The main thing - your prayers, kind wishes, and warm thoughts. People of all faiths are praying around the world. People who don't usually pray are praying. Whatever your beliefs, we appreciate you thinking about Emmett! 

As we've mentioned, Josh is a youth pastor at Level Ground Mennonite Church in Abbotsford. They are providing the flexibility with work that this young family so desperately needs. They have also activated a Meal Train to prepare meals as needed! What an amazingly practical and thoughtful way of supporting Emmett. There's no question that at times they are simply too exhausted to think about preparing meals. This is, without question, a blessing. is a fabulous network to provide support for families who have received this diagnosis. Again, very practical things. From toys that work to help keep Emmett stimulated to ideas and suggestions for the parents.



Family. What more can we say. The support and care from family. Emmett has had wonderful visits throughout the summer with his grandparents and his Aunts and Uncle. He's even seen extended family. Those times are a blessing.


Most important, Emmett is an incredible blessing. He is an unbelievably happy little boy. Your spirits are lifted beyond grief when you have a chance to interact with him.



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